Have you or a loved one been told a Hemispherectomy is needed to control seizures or to stop the progression of a diagnosed brain disorder? Learn what others have experienced having undergone this surgery and increase your understanding of the issues facing your loved ones.
Many people have been touched by hemispherectomy surgery. For most, being able to share their experience is often therapeutic and helpful to others. We hope that you find inspiration through these personal experiences.
Aaron's Story
AT 17, Aaron Purnell had to choose between death and an operation that would leave him disabled. Read More...
Aiden's Story
Aiden Waters is fortunate to be living in the 21st century when a surgical option exists for treating Sturge-Weber Syndrome. Read More...
Avery's Story
I have undergone 3 brain surgeries in my short life. Read More...
Cameron's Story
Cameron’s best hope was a hemispherectomy, a surgery to remove half her brain.
Cole's Story
Before surgery Cole tested at the level of a three-month-old. But in the three months since, Cole has gained one and a half years in development. Read More...
Jessie's Story
Months of uncontrollable seizures and a diagnosis of Rasmussen’s Encephalitis brought Jessie Hall to Hopkins Children’s in June for the most radical procedure in neurosurgery, hemispherectomy – the removal of half of her brain. Read More...
Josie's Story
March 2005, toddler Josie Wathan had her first seizure. The Iowa 2-year-old was put on medication, but by her fourth birthday, hundreds of seizures gripped her body each day. Read More...
Keeley's Story
Just like lots of children her age, little Keeley Green is a bright and mischievous, loves music and playing tricks but she is not like other kids. She has only half a brain.
Sarah's Story
At age 6, Sarah Alward experienced her first seizure. Once the seizures started, they wouldn’t stop. She was diagnosed at Cincinnati Children’s with a rare disease called Rasmussen’s encephalitis. Read More...
Shawna's Story
When Shawna had the surgery they did not know if she would live to adulthood, because they had not been doing the surgery long enough to know. But live she did, and live she does now.
If you would like to share your story on our website, send an email detailing your experience, photos and/or videos to our Webmaster.
Brian's Story
One of the rare cases of Sturge-Weber Syndrome that required a hemispherectomy. Read More...
Anes' Story
In March 2008, Adis and Aldina welcomed a son, Anes, into their world. They took him home and marveled at him. It was only a couple of days before their happiness turned to worry when Anes began to have what they would quickly find out were seizures. Read More...
Alaina's Story
I had the right half of my brain removed when I was seven, and now, at twenty-one, I am seven months away from graduating from Johnson State College with a B.F.A in Creative Writing. Read More...